Friday, August 28, 2009


So much Achieved, in such a short space of time

Monday 24th.
Went to to the gym, 1 mile on rowing machine and 10 minutes, on the treadmill, then went to the pool for a swim.
Went to Carmarthen to sort some URGENT “business, then home to go through, the latest emails, that needed a reply.
Ataxia South Wales, seems to becoming VERY WELL KNOWN, getting alot of emails, requesting information, on the group.
“click” on
Llanelli event
and Cardiff event

Tuesday 25th August, caught the 10.05 train to Newport, at Cardiff we were asked to change trains. I asked the guard “if this the right train, to be on ?” ”YES YES” and shut the door.
When, I arrived, in Newport, they weren’t expecting me, and said I had been on the WRONG, train ?????????????
Next one was half an hour, to Bristol Parkway (who told me I was LATE) and they would put me on the next train to Chesterfield, which was another 40 minutes wait. So the end result, is was a hour longer journey.
(this is the third time, something has gone wrong, all with the “common” theme – Arriva Trains Wales ?????????????)
I was advised to complain to Arriva Trains Wales, which is going to happen, in on my return, as it happens, I have a meeting with SWWITCH which hopefully will be attended by Arriva BOSSES !!!!!
One thing, I noticed (and will check up on) is Bristol Parkway, has a WIFI area, in the cafe.
NOW, I have been changed to the FIRST CLASS, part of the train, as the toilets, in this carriage, are “out of order”, so, in Birmingham New Street Station, it was down a ramp along the platform and UP a ramp. Its is CROSS COUNTRY policy (if not DDA law) for this procedure, to happen.
It appears that, this train is made up of two smaller trains ?? and divides into two a NEWCASTLE ??? (So alot of people, in this section have been told to move, at Newcastle !!!).
THE BIG DAY !!!!!!!!!!!!!!!!!!!!!!!
Detail can be found
and / or

As normal, photos on

Monday, August 24, 2009


Time - TIME - TIME - Time

I have upgraded to a NEW mobile phone, an LG Cookie
(my old phones, no5, had an intermittent fault, so if your number had 5 in it, well ?, and sending text messages, it was a *@!$?)
Over the last few weeks have been to many meetings, been swimming most mornings, and catching up on emails (as chairman of Ataxia South Wales, the “inbox” seems fairly occupied, every day)
Met up with makers of NOMAD wheelchairs the wheelchairs are very light and very manoeuvrable, as well as looking very nice.
Time has gone very quickly, and the month seems to be gone ??, trying to book a holiday, for October. The Ataxia UK is on 3rd October in a hotel on Manchester Airport, so we are taking advantage of being at the airport !!
Ataxia South Wales have two “Wheely Wobbly Walks” one at Millenium Coastal path, Llanelli on Sunday 6th September
Another is taking place at Roath Park, Cardiff on Saturday 26th September.
These are all part of “International Ataxia Awareness Day” 25th September.
The Ataxia Conference will be on October 3rd in Manchester airport (handy, that, it makes you want to go on a flight, afterwards ???).
Talking of Ataxia, I have an appointment, at the specialist Ataxia clinic, in Sheffield, next week, (something I have been trying to confirm, for a long while). See

Ataxia South Wales, have two “Wheely Wobbly Walks”
One in Llanelli on 6th September
Second in Roath park, on 26th September

Sarah Outen finished her adventure, I hope to catch up with her at Southampton Boat Show.
Hope to manage, to update, this BLOG, more often than of late, been a bit busy (for a change !!)

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