Thursday, September 17, 2009
Back to NORMALISH ***** Important information !!
Sunday (30-8-09)
Went to Carmarthen, to catch, train to Chesterfield, ready for my MRI scan, on Monday.
Train was on time, and fairly empty (until we were getting nearer, to Cardiff, there was some BIG event on ??).
Met at Chesterfield by G and D (and N, Ds PA). We went back had a meal and a good ole CHAT.
Made arrangements (with N) to pick up D and I, at 8.30ish, on Monday morning.
Went to the X-ray, department, booked in, for my MRI.
Within minutes, I was called in.
3 scans,-
Thorasic-Cervical- ???
took a total of approx 40mins. Very friendly and polite staff
(and WOW, how clean and up to date, is this hospital ?)
The whole event, was carried out , so quickly and EFFICIENTLY, it was amazing. (to think this has been arranged, in such a short time, -- 6 days from first appointment to Scan !!!! (not the, months, or YEARS, usually encountered !!!!).
I must Thank Neil, for his offer of taking me to the MRI appointment, without his knowledge, of the “whereabouts”, of the MRI department, and hospital, it took a lot of STRESS out of, the whole process.
We returned to the House to pick up G, and we all went for lunch at a local carvery (£3.50 per head !!).
Afterwards we went to Chesterfield, station for my return journey, (which was in First Class, part of the train, with Cross Country trains).
First, and only change, was Bristol Parkway.
Although, I was booked on, a train that stops in Cardiff, I waited 25 minutes, for the “Great Western train”, that goes straight through to Carmarthen (with no changes !!).
*** Also, been told of another Living with Ataxia “recognition”
LivingWithAtaxia.org was featured on About.com this week http://rarediseases.about.com/b/ ******
Tuesday (1-9-09)
A meeting, in Haverfordwest, concerning the setting up of a local Neurological Alliance. A very productive and positive meeting.
A radio broadcast of our “Wheely Wobbly Walk” in Llanelli was aired on Radio Carmarthenshire and Scarlet FM.
The Event (on Sunday 6th September) was well attended as really good fun, made a good amount of funds as well as some excellent awareness, we managed to gain a few new members, to our branch.
The event was covered by Llanelli Star, newspaper, which also got some more new members.
The “remedial” works have begun, on our Disabilities Grant, after the work was done very substandard (and NOT within building regs.) the first time. We now have a new cesspit in place !!!. pics at http://www.flickr.com/photos/alanroygbiv/
Wednesday 9th, attended a SWWITCH http://www.swwitch.net/ event in Swansea, from which have made some contacts.
This week I have attended a SAIL – Swansea Association for Independant Living, which also made alot of contacts.
Then went on to Cardiff, to stay, overnight, ready for a PSP symposium. http://www.pspeur.org/
This was an event I had been invited to. To my surprise two of my speech Therapists had come to attend !!.
To my astonishment the days event, was chaired by Dr H M Senior lecturer and consultant neurologist at Cardiff University,Royal Gwent Hospital and Cardiff and Vale Trust. During the tea break, was a great opportunity for me to ask him about “this clinic, with a department dealing with ATAXIA”
He explained his clinic and the various departments and hopefully we will, be in contact, with positive out comings. See my post at http://www.livingwithataxia.org/forum/topics/update-on-access-to-a-ataxia
Went to Carmarthen, to catch, train to Chesterfield, ready for my MRI scan, on Monday.
Train was on time, and fairly empty (until we were getting nearer, to Cardiff, there was some BIG event on ??).
Met at Chesterfield by G and D (and N, Ds PA). We went back had a meal and a good ole CHAT.
Made arrangements (with N) to pick up D and I, at 8.30ish, on Monday morning.
Went to the X-ray, department, booked in, for my MRI.
Within minutes, I was called in.
3 scans,-
Thorasic-Cervical- ???
took a total of approx 40mins. Very friendly and polite staff
(and WOW, how clean and up to date, is this hospital ?)
The whole event, was carried out , so quickly and EFFICIENTLY, it was amazing. (to think this has been arranged, in such a short time, -- 6 days from first appointment to Scan !!!! (not the, months, or YEARS, usually encountered !!!!).
I must Thank Neil, for his offer of taking me to the MRI appointment, without his knowledge, of the “whereabouts”, of the MRI department, and hospital, it took a lot of STRESS out of, the whole process.
We returned to the House to pick up G, and we all went for lunch at a local carvery (£3.50 per head !!).
Afterwards we went to Chesterfield, station for my return journey, (which was in First Class, part of the train, with Cross Country trains).
First, and only change, was Bristol Parkway.
Although, I was booked on, a train that stops in Cardiff, I waited 25 minutes, for the “Great Western train”, that goes straight through to Carmarthen (with no changes !!).
*** Also, been told of another Living with Ataxia “recognition”
LivingWithAtaxia.org was featured on About.com this week http://rarediseases.about.com/b/ ******
Tuesday (1-9-09)
A meeting, in Haverfordwest, concerning the setting up of a local Neurological Alliance. A very productive and positive meeting.
A radio broadcast of our “Wheely Wobbly Walk” in Llanelli was aired on Radio Carmarthenshire and Scarlet FM.
The Event (on Sunday 6th September) was well attended as really good fun, made a good amount of funds as well as some excellent awareness, we managed to gain a few new members, to our branch.
The event was covered by Llanelli Star, newspaper, which also got some more new members.
The “remedial” works have begun, on our Disabilities Grant, after the work was done very substandard (and NOT within building regs.) the first time. We now have a new cesspit in place !!!. pics at http://www.flickr.com/photos/alanroygbiv/
Wednesday 9th, attended a SWWITCH http://www.swwitch.net/ event in Swansea, from which have made some contacts.
This week I have attended a SAIL – Swansea Association for Independant Living, which also made alot of contacts.
Then went on to Cardiff, to stay, overnight, ready for a PSP symposium. http://www.pspeur.org/
This was an event I had been invited to. To my surprise two of my speech Therapists had come to attend !!.
To my astonishment the days event, was chaired by Dr H M Senior lecturer and consultant neurologist at Cardiff University,Royal Gwent Hospital and Cardiff and Vale Trust. During the tea break, was a great opportunity for me to ask him about “this clinic, with a department dealing with ATAXIA”
He explained his clinic and the various departments and hopefully we will, be in contact, with positive out comings. See my post at http://www.livingwithataxia.org/forum/topics/update-on-access-to-a-ataxia
# posted by ALAN - ROYGBIV @ 10:27 AM 
