Saturday, February 06, 2010



As most of you, will of seen, my friend Geoff Holt, has finished, his EPIC, sail, across the Atlantic ocean follow his bblog and see the press coverage of the challenge.
Keep the word challenge, in your head....
Another friend, Sarah Outen has announced her next adventure. “Goodbye January, hello World”, I will let you read Sarahs blog, to find out, more...
All the best Sarah.
Friday 22nd, travelled up to London, to attend AUK Trustee meeting
I was a bit early, so took a cab, to the O2
A very spacious, place to visit, with plenty to do.
I managed to get FREE tickets to visit the Micheal Jackson Exhibition, in the O2 bubble
On Sunday, Darran (fellow trustee and good friend) and I “wheeled” along to Kings Cross Station,, from the hotel !! A distance of approx 2.5 miles!!!!!!!!!!!!!
(No wonder I had pains in my shoulders, for a few days—I am no where near as fit as Darran, so Sorry pal, for holding you back)
Monday 25th was on the BBC Wales Today, news at 6.30pm
To speak on the report published by the National Assembly
Thursday 28th Went to Swansea, for a meeting with SAFE disability forum and Arriva Trains Wales and Great Western Trains.
Sunday 31st Ataxia South Wales, held its first meeting of 2010. 12 people attended, a very good meeting, afterwards we went to the BEEFEATER in Pemberton, Llanelli, for a meal and relaxing chat.
During this week, I went to a meeting of a Health, Social Care and Well Being, in Narberth , which ment alot of networking opportunities (Hywel Dda Health Board)
Friday, I was in “School”, Coleshill Social Centre, Llanelli. From there I went to another meeting of Carmarthenshire Disability Coalition
Don’t forget Rare Disease Day on 28th February (I have been invited to an evening event at the Welsh Assembly, with AMs, to mark Rare Disease Day)

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